In April 2007, the second annual “Spring Fling for LAM” fundraiser was held in Ontario. It was a fabulous, memorable evening organized by Ontario LAM patient Nathalie, her friend Pamela and family. The setting was the luxurious Brantford Golf & Country Club House with its view over the Grand River.

Raffle tickets were sold – “an arm’s length” for $20 – at the event for a number of items to be raffled and included (from LAM patients): a woven baby blanket from Kordula and a needlepoint pillow stitched by Marsha.

The US LAM Foundation website offers extensive information about the diagnosis and treatment of LAM. Rather than repeat these messages on this site, health care providers are advised to go to: http://www.thelamfoundation.org/medical-providers.html.

Recently, several review articles have been published about LAM. If you have difficulty in accessing any of these papers, please contact us and we will be happy to send you a copy. A more extensive review of the literature from 2004-2007 can be viewed in the Scientific research section.

A booklet for health care providers on the diagnosis and management of LAM can be obtained through LAM Canada upon request.

It can be devastating to receive a diagnosis of Lymphangioleiomyomatosis (LAM).   We are here to help.

LAM Canada was founded for Canadian women living with LAM. The organization has three main goals:

To act as a resource for Canadian women with LAM, their families and friends, by providing vital information, assisting (whenever possible) in the adjustments in their lives related to LAM, and offering support and connection with other LAM patients.
To increase the awareness and knowledge of LAM among the health care community and the general public.
To support international LAM research through participation and contributions.

LAM in Canada – the Numbers

The exact number of women in Canada who have LAM is not known due to the fact that it is often misdiagnosed ( e.g. asthma, emphysema, kidney tumours or other conditions) or not diagnosed at all. There are women who have milder forms of LAM and have not been diagnosed.

Some Canadian women with LAM have contacted the US LAM Foundation but have not contacted LAM Canada. The LAM Foundation will not provide LAM Canada with names unless the woman has given permission to be contacted.