Welcome to LAM Canada

It can be devastating to receive a diagnosis of Lymphangioleiomyomatosis (LAM).   We are here to help.

LAM Canada was founded for Canadian women living with LAM. The organization has three main goals:

  1. To act as a resource for Canadian women with LAM, their families and friends, by providing vital information, assisting (whenever possible) in the adjustments in their lives related to LAM, and offering support and connection with other LAM patients.
  2. To increase the awareness and knowledge of LAM among the health care community and the general public.
  3. To support international LAM research through participation and contributions.

LAM in Canada - the Numbers

The exact number of women in Canada who have LAM is not known due to the fact that it is often misdiagnosed ( e.g. asthma, emphysema, kidney tumours or other conditions) or not diagnosed at all. There are women who have milder forms of LAM and have not been diagnosed.

Some Canadian women with LAM have contacted the US LAM Foundation but have not contacted LAM Canada. The LAM Foundation will not provide LAM Canada with names unless the woman has given permission to be contacted.

We do know of 56 women living in Canada with LAM. Some have TSC-LAM. As of November 2007, the provincial numbers are:

None in Newfoundland/Labrador, PEI, Northwest Territories or Nunavit - None
Nova Scotia - 5
New Brunswick - 1
Quebec - 8
Ontario - 20
Manitoba - 5
Saskatchewan - 7
Alberta - 3
British Columbia -7

LAM Canada is a member of the Worldwide LAM Patient Coalition working with other LAM patient support groups around the world.

We are a charitable Fund through the Tides Canada Foundation: Canadian Charitable Number is: BN 86894 7797 RR0001.